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Monday
Jun142010

MRI time

next MRI booked for friday morning, not the best birthday present ive ever had but nevermind. i am hoping they wont sedate him again this time as he is meant to be doing a dance in the evening at his end of school party and it would be lovely to see him on stage. the follow up appointment is booked for 1 month later, its usually not such a big gap in between but i think the idea is that his PET scan wasn't too long ago and he is doing very well. if they aren't worried then niether am i! i really hope its not such a struggle to find his veins this time, it would make it so much less traumatic for him.

eye appointment this morning, very uneventful, we had the grumpy doctor who doesn't speak. no idea how Fletchers eyes are as he said nothing to us. all we know is we have to go back in a month and Fletch has to use eye drops leading up to the appointment.

physio on thursday, changed from today as time would have been too tight. although i have noticed a vast improvement with his balance its still not perfect, also he is still weaker on his right side so i think the physio will be really useful for him.

Fletch in himself is really happy at the moment and shannon seems to be happier at school. however i am still struggling to adjust to normal life, i have felt unsettled since we returned from America and i have no idea why? all i know is that i cant wait to get back there in october and have our meeting with Dr Chang. i have lots of questions about Fletchers tumor but no-one to ask and i certainly wont be looking on the internet for answers, not if i want to sleep at night anyway.

 

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